I came across this: http://www.keratoconus.com.au/keratoconus-treatment/ a while back and found it quite reassuring.

It can be hard indeed finding doctors who knows about the condition. All I can suggest it trying the following forum as there’s a large community and they maybe able to refer you to Someone good locally! http://www.keratoconus-group.org.uk/discussion1.html

Hope things work out for you!

I have recently started to panic and worry about what might happen (will I go blind) as my left eye is significantly deteriorating.
My doc at a Glasgow Eye hosp who I feel isnt very good hasnt discussed any options with me other than lenses although I have issues tolerating the hard lens which I am prescribed with for the left eye only.

I have an appointment next moth and I was thinking I will push to be referred for further info on cross-linking or intacs.
Why did u decide to go for cross-linking?

I have been searching for positive feedback online which hasnt helped my worry as more often online I find negative stories that just scare me relating to KC. I am glad to have came across your blog!
I have a child now also and I worry he may also develope it!

I hope you continue to post on your experience & im glad I came across your site

K

I came across your blog yesterday since I was researching about keratoconus and it’s been very helpful readind your chronicles about cross linking.

I’m getting that today and I was a little bit, not scared, but concerned about the post treatment, but now I’m not worried at all! And thank you for this last post, it’s been really nice of you to write this for other people to read, makes me wanna do the same in my native tongue, spanish. I’m from mexico btw

Thanks!!

Thanks for the feedback. Was quite a while ago now so hard to remember. I recall site being werid for a week or two though. I’d ask your doctor about it as can’t really say if that’s normal or not unfortantly. Not a doctor so non of what I say should be taken as medical advice. It’s just my experience!

I will do another post I think soon yeah. But generally now just go to the eye hospital every six months and they monitor my eyes for change with big werid machines! Only had it done in left eye so waiting to see what happens with the right. I have found it reassuring to go an eye doctor as well as an optician for checks. I’ve found some opticians give appalling advice. Like the last one I went to said I should only have my eyes checked every two years. Way to big a gap I’d say! As my doctor wants me to get them checked every six months. Plus told me I’d probably not develope anything in my right eye, when far more likely I will. But to be fair to opticians was having a very good one when I lived in Devon that spotted I had the conditions in very early stages!

glad you found this information useful. It was a long time ago now but yeah I think I remmeber some blurriness and senstivity at first yes, but ask your doctor.

Ah wow, that’s quick to get your other eye done, good luck!

I just had CXL done on my left eye like yourself about 2.5 weeks week. I notice that you have not mentioned anything about hazy or blurry vision. Did you feel that your eyes were sensitive to light after the procedure?
My vision is still blurry even this far after surgery. seeing the Doc on Friday for the operation on the right eye.
Blog was really helpful. Thanks mate.